| SSM_DC5 | 09-17-2025 12:25 PM | Quote:
Originally Posted by rymack
(Post 9193842)
IN regards to parents w dementia:
My mom went into long term care a bout 2 years ago now. She had some mental illness issues that were slowly getting worse and led to some sort of dementia that include but are not limited too being able to walk ( and now being not able to feed herself). There were some signs about 10 years ago of her slide into dementia but as it was intertwined with her ( undiagnosed , untreated ) mental illness.
At that time I sought out the advice of a psychologist ( might have been registered clinical counselor) . Basically it came down to the fact that I couldn't force her to get treatment as ostensibly she could still care and feed herself and her dog and basically was able to function.
The mental illness was quite alienating for my family ( wife/kids and I ) and it made me keep her at arms length. She didn't have a partner ( dad and her divorced when i was young etc) and I am a only child. She has a few siblings but the mental illness that alienated me alienated them. So we decided to see her on holidays and a few other times a year etc. Didnt help that she thought my wife and Bill gates were out to get her( why is it always Bill gates?)
So fast forward to 3 or so years ago she had a issue that she ended up at Surrey memorial for a unrelated health reason and I asked the doctor discreetly to have a psych eval and hold done on her . He agreed and off tot he psych ward she went. She was diagnosed with a couple different things (no surprise to us ) .
I ended up talking to the doctors and it came down to them wanting to send her home because she was able to walk and talk and cook etc. Dementia was starting but not ..rampant? I talked to the Occupational Therapist ( i think thats what they are) and we talked about how she still was able to keep her house tidy , could buy and cook her own food , do her own laundry etc. The doctors thought with in home support she could remain in her home.
So at this time it was recommended to me by a family friend that i refuse to take her home ( they want the family to agree to the plan for some reason..perhaps because of the mental health designation?). The family friend told me to refuse to take her home as a safety concern and to request she be sent to assisted living . At any rate i was given the decision to bring her home and set up supports or not.
I decided that if i was in her shoes i'd want my freedom as long as possible. So i said ok to the home plan , set up some in home supports etc. She went down hill over the next 8 months until one day I went over to pick her up tot take her to cataract surgery and found her on the floor ( after i broke in through her ground floor window) on the floor unable to get up , very weak and disoriented. She had covid. It was just luck i was there that day and if it was a different day she likley would have died.
So back to surrey memorial , back to the psych ward . This time i refused to take her home ( Fraser health offered round the clock care or similar which they don't have the staff for) , she was put into the system for Long term care and has remained there since.
Sorry thats a long read. Couple of key takeaways
- Dont wait. especially with traditional dementia/Alzheimer's. It can be slowed with treatment and there are new protocols all the time.
- Long term care homes are much more ...bleak ? worse anyway then Assisted living. If my mom had gone to assisted living when she first went into care she could have stayed there longer than going directly to long term care. Assisted living is way better than long term care. Long term care is hospital beds , assisted living is like little apartments where you eat in a common area etc. Like a dorm.
- If your dads care is too much for your mom. Bring him to the hospital and refuse to bring him home. You may not be there yet but this is the way to force the System to deal with them. I know how hard that is as Ive had to do it but you have to balance your dads wellbeing with everyone else's.
- While your dad is the one with the disease everyone in the family will suffer. I know culturally a lot of people don't want to dump there parents in care but sometimes it is the best for everyone involved.
- if its a non starter to bring your dad into care ( at this point anyway) consider getting a live in Nanny. My wifes family actually used to run a nanny agency ( family friend still runs it ). This might be a good transition for your family.
- Take care of your own mental health. I can speak from my experience of all the guilt and remorse for not trying to forcer my mom into mental health treatment. Always wondering what if . Always feeling i had to choose my wife/kids over my mom. It can really be hard. Talk to a mental health pro or at least a bro.
- Don't expect the rest of your family to act like adults. My moms younger brother hasnt seen her in 6 years cause he was wigged out by the mental health stuff. And now wont go to visit her in Long term Care. It sucks but if they wont help you paddle the canoe then gtfo of the way. | If it comes to the point of "dumping your demented family" into long term care (LTC). I encourage you to consider changing code status to stay in long term care for treatment and do not seek the hospital for help to prolong their life.
Here's the situation I see, your parent is in LTC, no one visits them because they've already been alienated from other family and friends and you yourself is too busy with your own family to visit. Is there REAL quality of life for them if their own family isn't even paying them regular visits?
LTC has common areas for meals and activities, if the one you are at does not have this, then go talk to the Director of Care or Social Worker at the current LTC and get on a list to get to a different LTC.
As for "refuse to take them back" as a tactic to work the system. Your loved one better not have an address and not have their name as a homeowner. A medically stable person can be discharged from the hospital by walking them just outside the door of the hospital with a taxi voucher. Up to that person what they do next, but if you want back into the hospital system, try Emergency again. Waitlists to get into LTC is way too long, just ask how long it took people to get into SUCCESS/Villa Cathay, some wait years and die before they make it in because they had to wait so long. There are certain criteria to get into a LTC, so if your loved ones don't meet that criteria, then other options will be explored....maybe even a shelter if their homeless. |